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Sorry I haven't really been active here... by Swandog
Hi all, I don't know if anyone still keeps up with me here, but I thought I would just give a quick update to those of you who don't follow me elsewhere (mainly FA/FB). Back in June, we went on vacation to the Alps, and during that time, my left leg suddenly became completely numb on the outside (skin layer), from the waist down, and burning/tingling on the inside (deep below skin layer), at the slightest touch. And my right leg became so weak I could barely lift it, and I couldn't clench my toes. It was a very good thing that I already had my cane with me during the trip (for the chronic plantar facsciitis in my foot), as I then desperately needed it to walk. I had no idea what was going on, and no way to really find out until I got home and could see my doc. After I got back, they ran all kinds of tests, did bloodwork, gave me an MRI and did a spinal tap, and they finally pinned it down to being MS. So needless to say, that diagnosis has pretty much flipped my life upside down, and even though I'm on meds for it now, my health has been going downhill, and I don't know if it will get any better, or keep going downhill. I did manage to get the feeling back in my left leg, and some strength back in my right one, but it's still weak, and I still need a crutch to walk anywhere, and I can't go very far before my legs just totally give out.
I'm also so extremely fatigued; I wake up exhausted, and even the slightest chore wipes me out, plus there's the chronic headaches, chronic insomnia, dizziness, chest pains, lower back pains (can't even bend over), knee/joint pains, hand tremors, painful spasticity, balance issues, depression, inability to focus/concentrate on/remember anything, and inability to find the right words I need to say when talking (so I usually prefer not to talk at all to anyone but my hubby, since he understands me even when I can't get the words out). And now, in the past few days, my right arm/hand--which is my drawing hand, btw--has gotten very weak and painful, burning and tingling at the slightest touch (even from hair and clothing lightly brushing against it), with shooting pains from my shoulder to my wrist, and severe "phantom itching" (deep under the skin where it can't be reached, and scratching doesn't help, since it's just damaged nerves misfiring) that keeps me awake all night, and also prevents me drawing or crafting anything. Even typing and holding objects is difficult. I don't know how long this symptom will go on, or if it's a temp thing...with MS, you can never tell. But anyway, all this (along with other pressing/stressful matters) are why I've been so quiet and unproductive lately, so please bear with me, as I really don't know when I'll be able to be creative again. :(
Take care,
~SD
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Comments
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I'm so sorry :( That sounds awful. I hope you can find a good place to be and eventually get to be able to do what you like to do again
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oh jeeze... x.x Sounds like a whole bunch of ick... I hope you're able to recover swiftly and get back to things as normal as possible! D: I can't even imagine what having MS is like.. But you'll be in my thoughts none-the-less. <3
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It's rather heartbreaking to hear you having to go through all of this, and an inability to draw because of it just makes it ten times worse. I miss seeing you around as much and talking to you I admit, but only doing what you can and what your health permits is far more important.
My thoughts are with you, and I hope you can eventually find some kind of "happy medium" with balancing out your health and being able to do art again. Take care and be strong, we're all rooting for you.
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I'm so sorry to hear about this, it's good to hear from you though it brings such sad news. Our thoughts are with you, we hope something improves.
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:C good to see you again, bad that it's under these circumstances. I wish you nothing but the best and send hugs!!
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Goodness, it is a shame that this has happened to you. I hope you all the best through these troubling times.
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Good luck with everything. A local friend of mine has sclerosis and even though it's really hard on the body and morale, when she has the right medicine it's a bit better. I'll keep my fingers crossed for you.
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<3
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So sorry to hear about your situation! I agree with what has been expressed in the comments already, I hope that you are able to resume being creative in a way or another, to do what you really enjoy. Wishing you all the very best!
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Augh no I hate hearing this :c I'm sorry it's been flaring up recently and I hope it settles enough for you to work again soon <33
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I am so sorry to hear about this happening to you. I wish the best for you and your family.
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Take the time to take care of yourself.
Fortunately, it can go into remission. I knew a guy who had MS and a bucket of other disorders that all started to go into remission and he's in his 80s now. So there's at least hope that this won't be forever.If you would be interested, I have a recipe for a "power smoothie" that has worked for some folks. It could give you a boost (100% vegan too) to help combat the fatigue.
Wishing you all the best.
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......coooooHugs..... For months indeed I've been wondering how you've been doing, and so very appreciate the update..... Glad also to know you got some feeling back in the leg... but all those other effects and happenings.... ... gentle-wingstrums upon you....... those sound so difficult.... -_- .... I hope as you mentioned that they could be temporary and/or get better again with treatment and care and time... and I do hope they will..... MuchMuchLove to you and your mate, swan-sis... wishing you wellness and bestest of tidings as I can from across the ocean..... -Snugz- .... -C....
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My best wishes to you!
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Zyleeth
<333333 I am so sorry you're going through this. Sending many good thoughts your way all the time.